Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Monday, April 12, 2010

New Team to Meet Part 1

There have been many occasions in my life where I have met with new doctors or been to a new hospital to receive medical treatment; however, it has been many, many years since I have done just that. UCSD has been the place where I have been cared for by amazing doctors, nurses, respiratory therapists, nutritionists and social workers too. I have been a patient in the UCSD system for so many years now, with the exception of one year living abroad and five years in college when I was a patient elsewhere. UCSD is place where I feel safe, comfortable and well liked. The people who work there are like a second family to me. I know that is crazy to feel that way, but when I have spent my life in and out of hospitals, clinics and etc. That is how I feel.

Now the transplant team in San Diego has referred me to University of Southern California to transfer my double-lung transplant listing status. By the grace of God, I have survived a massive hemoptysis (hemorrhaging from the lungs) about twelve years ago. During that crisis I received the best care at Stanford. I had bronchial embolizations and several blood transfusions in which I did acquire antibodies. These antibodies are perfectly harmless, yet when needing any kind of organ transplant, the donor must match one's blood type, plus antibodies and etc. OneLife organ procurement region covers Los Angeles & six other counties. In theory that gives me a greater chance at receiving donor lungs that would be my match. So onto a new adventure, meeting a new lung transplant team and hospital. My appointment is on Thursday an all day affair. We are spending the night on Wednesday in a motel, so we won't miss my first appointment at 7:00 AM. I would ever be so grateful for your positive vibes and encouraging prayers!

I had a vivid dream last summer about going to Los Angeles for my transplant to the county where I was born. In the dream, I was directed three times by a firm voice to go to Los Angeles for transplant. Then I woke up. Perhaps it was an angel or my subconscious. It was one of those dreams I would normally listen to, but I was accepted last year to the UCSD Transplant Program. I put that dream to the wayside. Now that they have referred me to USC, I strongly sense my dream is becoming a reality. I feel this is the direction in which God is guiding me. It gives me comfort knowing this. Has anyone ever had a significant dream like this?

2 comments:

  1. That really is an amazing dream! It does seem that L.A. is going to be where the action is. We are always praying for you and will be there for you in anyway we can. Our casa is yours.
    Love you so much.
    Marylen

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