Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Wednesday, February 23, 2011

Just Another Day

Well it looks like this winter has took me through a loop! I Had to go back into the hospital again after catching a nasty virus that went into my lungs. Turns out that virus had been RSV and pneumonia. I simply haven't been this exhausted in long time. Near the end of my stay, I had to deal with a small bowel obstruction, constipation where I hadn't gone in almost four days. It was so awful. I was so relieved once I finally could go. I think it was the combination of being in the hospital for almost a month on various antibiotics and other meds and plain old CF gut that caused it all. That is one thing I hate most about CF is all the GI issues that I have to deal with sometimes. When the doctor suggested I go home, I was so ready to get out of there! Now as I sit here and type this message I think about a dear friend who lost his battle to CF this week, Mike. I was so surprised to hear the news as, I was in the hospital with him and had seemed to be getting a little better. Now I am just so angry and sad at the same time. It's so hard to understand ifs and whys. I could go nuts thinking about it every time a friend dies to this crazy disease. It's just plain hard. Sometimes music helps or reading scripture. Other times I just want to scream or yell, but I just don't have the air. Go figure! So right now in this very moment by mentioning our friend Mike, I am at least letting others know how much I care. He was a gentle, kindhearted soul who loved hot rods and fixing old cars to their former glory. I saw some wonderful pictures, and he really had talent. Please remember his family in your thoughts and prayers.