Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Sunday, December 20, 2009

First Time

I am new to blogging, so I thought I would simply write about my day.  I did my airway clearance treatments, and will do more later. I use a combination of the vest and postural drainage & percussion (PD&P). And of course my nebulizers are the usual albuterol, atrovent and pulmozyme.  I also aerosolize colistin every other month. All in all treatments take up about 5-6 hours of my day. It can become somewhat tiring & repetitive, but I know if I did not do them I would feel awful. I started using oxygen while sleeping & with exercise about six years ago. Now I use oxygen 24/7. I used to take various dance classes at the local community college, and danced with a small O2 tank on my back. It was great!  I still use that backpack, except I have not danced in over a year. The most exciting thing I can do now is walk at a slow pace & stretch. This is one of the reasons why I look forward to a future where I can dance again. I truly miss it and hope to swim again too. 

There are tantalizing smells coming from kitchen where my chili is bubbling in my slow cooker. Can't wait to eat!  I enjoy cooking and wish I had more energy to do it.  That is what is so nice about my slow cooker.  Throw the ingredients into the cooker and forget about it for a while. Philip helps me with most of the chores around the house now, as I get easily more short of breath.  It is comforting to know that he is there for me, but I do wish I was able to help him.