Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Thursday, October 21, 2010

Ramblings

Hanging out at home on this dreary rainy day. The week has gone by rather quickly, and the weekend is almost here. Been taking care of myself and Philip. Doing all the usual treatments and such. So happy to have our two cats, Gemma & León. Even when they wake me up in the early morning hours wanting to be fed, I still love them! They are a part of our little family and they brighten my day all the time. I'm slow cooking some bean soup on the stove in a dutch oven and am making it up as I go along. Kind of making it from veggies and ingredients that are in the fridge. I am looking forward to trying it out later today! I have been home from the hospital now for about three weeks. It has taken me a while to feel up to writing and general daily stuff as well. I have been catching up on some must needed sleep and resting a lot too. Been thinking that I need to get some exercise equipment like a stationary bike or an elliptical machine so that I am fit enough for transplant surgery and recovery. I have a feeling this fall & winter will continue to be rainy and windy not so conducive to walking outside, especially when I need to stop to catch my breath all the time. I am so looking forward to after transplant when I will be able to do the things I enjoy doing like swimming and dancing, and even the not so pleasant things in life like truly giving the house a good cleaning! And I want to work outside the home and have a sense of accomplishment and be able to earn a living like most people. Not sure what direction to go in; have so many ideas. Thinking pharmacy technician or even a pharmacist depending on how much or little I want to go back to school?! I also have thought of working in a library or working as an office manager or non-profit sector?! I guess I will first have to get well and take each day as it goes. Created a vision board a few months back with the center piece a nice set of lungs, within the four corners are: travel, spirituality, sport or activities and potential careers. I believe this helps me focus on the future, and it gives me hope that it will happen. I can always add to it as well. Right now though I must live in the moment and come up with creative ways of keeping myself occupied. Any ideas? I admit it that I have procrastinated with taking a knitting course or club. And I have a also procrastinated at joining a book club as well. Will be more motivated to do something now that I actually put it out there for all to read! Until next time!

Saturday, October 2, 2010

Home Again

I just home yesterday after being in the hospital for three whole weeks! It feels wonderful to be home and finally relax! I slept in until 10:00 AM today and watched movies. Actually I am still feeling quite tired now, which is usual for me after such a long hospital stay. But it still feels so good to get a good night's rest without interruptions and there isn't an IV pump bleeping every 20 minutes either! All I can say is that all is right with the world right now. Just thankful to all the doctors, nurses and respiratory therapists who take care of me. I had so much junk in my lungs this time. Coughed up so much crap. I thought it was never ending. And thanks to the housekeeping and dietary staff who kept my room clean and delivered food to my room. It is much appreciated!