Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Tuesday, January 18, 2011

Date Night

Last weekend we actually went out to dinner and a movie. The dinner was really tasty. I had ribs, veggies and mashed potatoes, and Phil had some yummy fajitas. Then we shared a fabulous molten chocolate cake! Then we went to the cinema and watched The Kings Speech which was well acted and fabulous. After the movie, I was in the ladies room when I couldn't stop from coughing in the stall. Meanwhile two well meaning women asked if I was OK or if I was in need of help. First off, I couldn't say yes or no because I was coughing. Second of all it takes a while to catch my breath, so I cannot talk. All I could say was, "Yeah." So when I came out of the stall to wash my hands a very young woman who worked at the cinema kept looking at me and asking me whether or not I was OK. I said yes and kept nodding my head. I was still catching my breath and felt lightheaded. She kept saying that just remember that if I need anything that I could approach anyone with a name tag and that they'll send for help. I was thinking oh no, so embarrassing! Could you imagine that they would send an ambulance or medics to treat me after a coughing fit?! Then she kind of followed me behind me out the door. I immediately went to Philip where he helped me to a chair. That's when I remembered I had left my phone in the theater, and he went back to get it! Fortunately one of the people who worked there had just come out of the theater with it in her hand. I gave a sigh of relief. I realize that the employee in the bathroom was trying to be kind out of concern for me, but I also got a vibe from her that she was uncomfortable which made me feel very uncomfortable. While I did enjoy the dinner and movie, reality hit me just how stuck to home I truly am. Sometimes I feel confined, I can't get off schedule with my nebulizer treatments or my physio. Without them, I will get very short of breath, my oxygen saturations dip and cough for long periods of time to clear my lungs. Thus I must stay close to home.