Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Wednesday, June 23, 2010

Reflections

Thanks for your patience. So little and so much has happened in the past few months. I am still only listed in San Diego. I hope to be listed in Los Angeles real soon. USC wanted me to do some additional tests before they could make their decision. Now I am to meet two additional members of their team before final decision. Once they accept me, then they will need to get authorization from my insurance. And I do have great hope that my insurance will authorize to dual list me. Please send those positive vibes and prayers!

On another note, I recently had a birthday and turned 40 years old. One half of me feels so blessed to be alive right here right now and celebrate! Just like that song written by Mike Edwards sung be Jesus Jones. The band was very popular in the late 80's. Does anyone remember them? And there is another side of me that feels time has totally gone by so quickly like that old cliché. So this has been a month of refection and going back and forth to doctor's appointments and other tests. Sure wish everyone a wonderful summer! Hopefully will have more good news to share soon!