It is a huge relief to be home from a three week hospital stay! All in all my clean-out/tune-up went rather well. The IV tobramycin and merropenem seemed to actually help this time. And the PD&P four times a day helped tremendously. My spirometries are not too much different than when I started but overall I am pleased. At this point in my life, I am simply maintaining what I have now. I still dream of the day when I can dance and swim again, but I also want to work and travel after transplant. I have this real need to go exploring both at home and abroad. I love watching travel shows and the history channel's stories about national parks. I think it would be so wonderful to drive cross country either in a small RV or car and visit all the different national parks and California state parks as well. In the meantime I can dream while I run errands with my husband or listen to the birds sing in the back yard or visit the beach and watch the waves flow.
Having a CF can be a blessing and a curse. I have learned so much about myself and who I want to be. But a dear friend passed away just a few days ago from CF. Jackie was one of my former campers from Camp Pillfeather, so I remember her from when she quite young. She grew into a remarkable young woman with a wonderful laugh and smile that was contagious. She was amazing. I hadn't seen her in person in years due to cross infection issues, so we kept in touch through email and facebook. I am so tired of losing friends to this disease. Jackie will always remain in my heart forever!
