Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Tuesday, January 19, 2010

Tough Night

Had a difficult night. I was coughing too much, upset stomach, short of breath and a headache. Had to crank my oxygen from 4 liters up to 6 liters. Sigh... Needless to say I am so beat this morning! I sure hope that I can nap sometime today. I don't know how other people feel, but I have a hard time napping during the day. Not sure why. All this waiting and thinking is a little too much for me at times. It can be overwhelming, and I am trying not to focus too much on myself. Meanwhile thinking about the people in Haiti and other countries who are living in such horrific conditions. Pray for them every day.  And hope to donate some medical stuff to an nonprofit organization, but I found out that organizations cannot accept medical supplies from individuals. Gosh.  Any suggestions?  Here are some great organizations who do so many caring things for others in need.

http://www.interfaithservices.org/

http://www.irteams.org/

http://www.theirc.org/