Adventures and Musings: Home Again

Welcome

Most of you already know me, because you are my dearest family and friends. Just in case someone else finds this unaware, I will give my introductions: My name is Katrina and I have a genetic disease called Cystic Fibrosis & CF Related Diabetes (CFRD). I am married to the love of my life, Philip who also has Cystic Fibrosis. He received a life changing bilateral lung transplant in 2005. I am currently wait listed at USC and UCSD for a bilateral lung transplant. I hope God blesses me with the same opportunity as my husband.

Saturday, October 2, 2010

Home Again

I just home yesterday after being in the hospital for three whole weeks! It feels wonderful to be home and finally relax! I slept in until 10:00 AM today and watched movies. Actually I am still feeling quite tired now, which is usual for me after such a long hospital stay. But it still feels so good to get a good night's rest without interruptions and there isn't an IV pump bleeping every 20 minutes either! All I can say is that all is right with the world right now. Just thankful to all the doctors, nurses and respiratory therapists who take care of me. I had so much junk in my lungs this time. Coughed up so much crap. I thought it was never ending. And thanks to the housekeeping and dietary staff who kept my room clean and delivered food to my room. It is much appreciated!

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Adventure & Musings

According to the dictionary, adventure is an undertaking involving unknown risks or the encountering of risks. And musings is described as meditation or thoughtfully abstracted.

I feel that my decision to become a candidate for lung transplant and my life thus far has been an adventure of sorts. Learning to take those risks and looking forward to the future is how I have persevered. At this point in my life, I find myself musing over everything! I mediate or pray to God every day. I find myself thoughtfully abstracted now that I am more idle due to my lack of energy and shortness of breath. This will be my forum for getting information out to all my loved ones who wish to know what is happening in my life.